Every day is different for Montgomery Frazier. He never knows what to expect when his day typically starts around 8 a.m. All he is sure of is that he will do the best he can, learning on the fly, to take care of someone he loves.

His husband, Ben Mindich, is battling Lewy Body Dementia.


What You Need To Know

  • Dementia is expected to impact nearly triple the number of Americans from now to 2060

  • The National Institute of Health reports 16 million Americans are family members who serve as caregivers now

  • The emotional toll can be high but the financial one can be, too

  • It can leave families without an income with one battling the disease and the spouse serving as caregiver

The number of families dealing with dementia is expected to grow a staggering amount in our lifetime.

By 2060, the Centers for Disease Control and Prevention project the number of Americans suffering from a form of dementia will nearly triple, from over 5 million to 14 million.

Living with the disease can be painful. That's true not just for the person whose memory is slipping away, but for the loved one often tasked as the caregiver.

The National Institute of Health reports there are 16 million family members in these roles right now. That includes Frazier.

Mindich, who was a longtime Saks 5th Avenue sales associate in fine jewelry, was diagnosed with the Lewy Body Dementia last year.

Last month, Mindich and Frazier welcomed NY1 into their home to get a glimpse into how their lives have been turned upside down.

For a couple that has photos of their travels all over the world, they now are grateful for a trip across the street to their local diner in Sutton Place.

Their home is full of photos of their love story.

“It makes me cry. I’m crying all the time. I remember everything and I said, ‘Oh my god, that was so fun,’” said Frazier, who has worked in fashion his whole career, including as a director at MTV.

What Mindich remembers, though, depends on the moment.

At one point, he looked at a photo of his children and grandchildren hanging in his bedroom. He rattled off all their names and gushed about how much he loves each one.

But about 20 minutes later, he started hallucinating, seeing people who weren't in his living room.

“The mother. The mother. The girl’s mother,” he said, adding she was sitting next to a black and white sculpture at the other end of the room.

Frazier, watching his husband, told Mindich to walk over to the sculpture and touch it.

"That's not a person," Frazier said.

"No," said Mindich.

"He doesn't believe me," he added, referencing to Frazier.

"Because they're not there," Frazier responded. "It's not that I don't believe you. I believe you see them in your mind. But they're not there."

In the last year, Frazier has become Mindich's full-time caretaker.

“It has turned our world upside down,” said Frazier, who helps Mindich with his regiment of pills and taking his blood sugar.

However, the job is far beyond that.

There are the little things, like blowing out candles when Mindich can’t, steadying him as he walks and helping place a napkin on his lap when they eat.

Frazier also has to keep a look out for important items that sometimes go missing.

“He’s constantly hiding things because he thinks people are going to steal them. But he’s hiding them from us and sometimes he cannot remember where he hides things.”  

It happened while NY1 was with the couple.

“Where’d you find this," Mindich said to Frazier.

“On the ground," Frazier said back.

That was Mindich's credit card, tucked away somewhere on the floor of their bedroom.

A few days earlier, Frazier stopped Mindich from crossing the street into traffic.

“Life changes day by day,” said Frazier.

“You give me the love that I need,” Mindich told his husband, as tears rolled down Frazier's face.

It's not the life they once had.

It’s hard for Frazier to work and Mindich simply can’t now. Frazier said he has been trying to qualify to be paid by the government as a caregiver, but that there are so many hoops and hurdles for that to become a reality.

So, they’re living off savings and social security.                                

In fact, there was a point where they were so behind on rent, Frazier said they were in danger of losing their apartment.

Frazier set up a GoFundMe page to help and so far, they've raised more than $19,000. He is making coffee mugs, notebooks, and other household items he sells online to bring in some sort of income, as well.

“This can happen to anybody. It can sneak up on everybody,” said Frazier, who added he's been relying on help from a nonprofit, CaringKind, that supports caregivers of Alzheimer's and dementia.

So, they try to live in the moment.

Montgomery handed his husband a notebook, one that he is selling online, but this one is for Mindich to keep.

 "I want you to write things that will help you remember who you are and who you were,” he said, handing the book over.

“I have a good attitude," said Mindich, as he is ready to do whatever it takes to try to stop the memories of his life from slipping away.

A few days later, Frazier informed NY1 that Mindich wrote his first entry.

"I must remember my life."