Spina bifida is a condition that is diagnosed the second babies are born. It's a severe condition where the back does not close properly, exposing the spinal cord.
"That is not a condition compatible with life, so something has to be done to close that opening and get those nerves protected," said Dr. Anthony Malone, developmental pediatrician.
Surgery to protect those nerves is done immediately. Other complications with spinda bifida include a condition called hydrocephalus.
"Hydrocephalus can obviously injure the brain, so there are higher rates of learning disabilities but there are people who are geniuses," Malone said.
"I know I had surgery within the first 24 hours to close the opening in my spine," said Heather Howedel.
Heather Howedel said her life isn't much different than anyone else, but she's dealt with a lot. First, she overcame the academic challenges.
Then there were the physical challenges.
"When I was younger, I had physical therapy and occupational therapy. My physical therapy has continued pretty much much my entire life."
Her entire life has been met with obstacles, all of which she has overcome and now she is a pillar of strength for others.
"I am the administrative assistant for the Spina Bifida Association of Northeastern New York. I help them make connections with the community and get recourses out. If they need anything, if they have any questions, they can call."
While she may be different in how she gets around, what really sets her apart from others is her attitude.
"Try to stay positive and yes, you will have bad days but as long as you have good days in between and more of them, it's not any different."